3rd Edition of Dementia World Conference 2026

Abstract

What does it mean to truly live—when memory begins to fade? Living Fully with Dementia is a compassionate, empowering guide for caregivers, loved ones, and professionals navigating the emotional and psychological complexities of dementia care. Written by Dr. Shez Kennedy, a Psychology-Informed Life Coach and Dementia Care Specialist, this book offers a deep human approach to caregiving, one rooted not just in clinical understanding, but in emotional intelligence, dignity, and connection. Dementia is often framed as a story of loss of memory, identity, and independence. But this book invites you to see beyond that narrative. It challenges the idea that life ends with diagnosis and instead opens the door to a new way of relating, caring, and even growing alongside those experiencing cognitive decline. Through a blend of professional insight and heartfelt reflection, Dr. Kennedy introduces readers to the concept of emotionally intelligent caregiving—an approach that prioritizes empathy, self-awareness, boundaries, and presence. Rather than focusing solely on managing symptoms, Living Fully with Dementia teaches caregivers how to manage their own emotional responses, reduce burnout, and build meaningful connections that transcend memory. Inside, you will discover practical tools and frameworks to help you: • Understand the emotional world of a person living with dementia • Communicate with compassion, even when words fail • Navigate challenging behaviors without losing your sense of self • Set healthy boundaries while still providing loving care • Recognize and process grief, ambiguity, and anticipatory loss • Maintain your identity and well-being as a caregiver This book also explores the stages of dementia not just from a medical lens, but through an emotional and relational perspective—helping caregivers anticipate changes while staying grounded and present. Dr. Kennedy emphasizes that caregiving is not just a role—it is a relationship, one that requires care for both the giver and the receiver. A unique strength of this book is its focus on the caregiver’s inner world. Too often, caregivers are overlooked and expected to give endlessly without support. Living Fully with Dementia brings the caregiver back into the center of the conversation, offering validation, insight, and permission to care for oneself without guilt. Whether you are a family member caring for a loved one, a professional in the field, or someone preparing for what lies ahead, this book provides both guidance and hope. It acknowledges the pain, the confusion, and the emotional weight of dementia—but it also illuminates moments of connection, love, and even joy that can still exist. This is not just a book about dementia. It is a book about humanity. It is about learning how to stay present when the past is slipping away. It is about finding meaning in moments that cannot be remembered. And most importantly, it is about learning how to care—without losing yourself.